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Publications & Resources
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Publications to Purchase Now
Research
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2009 Alzheimer's Disease Facts & Figures

This is a statistical abstract of U.S. data on Alzheimer's disease published
by the Alzheimer's Association. -
2008
Alzheimer's Disease Facts & Figures

This is a statistical abstract of U.S. data on Alzheimer's disease published
by the Alzheimer's Association. -
Adult Day Health Care Services: Serving the Chronic Health Needs of Frail Elderly Through Cost-Effective, Non-Institutional Care, Health Management Associates
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Adult day service use and reductions in caregiving hours: Effects on stress and psychological well-being of dementia caregivers.
Gaugler, J. E., Jarrott, S. E.,
Zarit, S. H., Stephens, M. A. P., Townsend, A., & Greene, R. (2003). International Journal of Geriatric Psychiatry, 18, 55-62. -
Adult Day Health Services: A Review of the Literature
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Rutgers University -
Adult Day Services: A Key Community Service for Older Adults
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Adult Day Services: The How To's of Development, Integration, Marketing, and
Accreditation
Gingerich Home Health Care Management Practice.2000; 12: 43-49.
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Adult Day Services in Rural Pennsylvania
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published September 2004
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Consumer Caregiver satisfaction with adult day service programs. Jarrott, S.E., Zarit, S.H., Stephens, M.A.P., Townsend, A.,
& Greene, R. (1999). American Journal of Alzheimer’s
Disease, 14, 233-244.
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"Consumer
Perspectives on Quality in Adult Day Care"
by Amy Leventhal Stern, PhD. and Francis G. Caro, PhD. University of
Massachusetts, www.geront.umb.edu February 2004
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Early community-based service utilization and its effects on institutionalization in dementia caregiving.
Gaugler, J. E., Kane, R. L., Kane, R. A., & Newcomer, R. C. (2005). The Gerontologist, 45, 78-89.
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"Effects
of Adult Day Service Programs on Time Usage by Employed and Non-Employed..."
Jarrott et al. Journal of Applied Gerontology.2000; 19: 371-388.
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Evaluating community-based programs for dementia caregivers: The cost implications of adult day services.
Gaugler, J. E.,
Zarit, S. H., Stephens, M. A. P., Townsend, A., & Greene, R. (2003). Journal of Applied Gerontology, 22, 118-133.
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"Impact of Adult Day Services on Behavioral and Psychological Symptoms
of Dementia," Elia E. Femia, Steven H. Zarit, Mary Ann Parris Stephens, and
Rick Greene. Gerontologist 2007 47: 775-788. [Abstract]
[Full
Text] [PDF]
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Genworth
Financial 2009 Research Findings on Long Term Care including adult day
health
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Iowa Adult Day Services Study Findings

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"Living
with Alzheimer's Disease: A Study of Adult Day Health Services in
Massachusetts,"
Nina M. Silverstein, Cathy M. Wong, Kristen E. Brueck. Gerontology Institute
of Massachusetts Boston. (October 2008)
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Medical and Social Adult Day Service Programs: A Comparison of
Characteristics...
Leitsch et al. Research on Aging.2001; 23: 473-498
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MetLife Market Survey of Adult Day Services & Home Care Costs 2007

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MetLife Market Survey of Adult Day Services & Home Care Costs 2008

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MetLife Market Survey of Long Term Care Costs 2009

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National Study of Adult Day Services, Partners in Caregiving, Robert Wood
Johnson Foundation
(Order a copy of the full report)
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"Outcomes
of Adult Day Services for Participants: A Conceptual Model", by Holly I.
Dabelko and Jennifer A. Zimmerman, The Ohio State University. Journal of
Applied Gerontology, Vol. 27, No. 1, 78-92 (2008).
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Partners in Caregiving National Study of ADS
(Order a
copy of the full report)
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Regulatory Review of Adult Day Services
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Respite for dementia caregivers: The effects of adult day service use on caregiving hours and care demands.
Gaugler, J. E., Jarrott, S. E.,
Zarit, S. H., Stephens, M. A. P., Townsend, A. & Greene, R. (2003). International Psychogeriatrics, 15, 37-58.
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Robert
Wood Johnson Foundation National Study of Adult Day Services
(Order a
copy of the full report)
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Seeking What's Best During the
Transition to Adult Day Health Services
Margaret J. Bull and Ruth E. McShane
Qual Health Res 2008 18: 597-605. [Abstract] [PDF] [References]
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State Adult Day Health Services Programs: A National Profile (2001-2002)
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Published May 2005 by Rutgers State Health Policy.
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Stress for family caregivers: Effects of day care use. Zarit, S.H., Stephens, M.A.P., Townsend, A.,
& Greene, R. (1998). Journal of Gerontology: Social Sciences, 53B, S267-S277.
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The effectiveness of adult day services for disabled older people.
Gaugler, J. E., &
Zarit, S. H. (2001). Journal of Aging and Social Policy, 12, 23-47.
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Vermont Adult Day Services: Emerging Best Practices in Recruitment and
Retention of Direct Care Workers by Donna Reback and Joy Livingston,
Flint Springs Associates, October 2006.
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Wives and daughters: Differential risk factors in the nursing home placement of cognitively impaired family members. Cho,
S., Zarit, S.H., & Chiriboga, D.A. (2009). Gerontologist. 49, 57-67.
Resources
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After the Life Cycle: The Moral Challenges of Later Life, Lecture by Thomas Cole, September 2007 CAC-sponsored a discussion with medical humanities expert and historian Thomas Cole in September 2007. Cole posed the questions: What are the vices, obligations, and virtues of older adults in a time of expanding longevity? In a "post-Erickson world?" Center on Age and Community, University of Wisconsin-Milwaukee
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A Guide to Supporting Family Caregivers Through the Alzheimer's Disease Trajectory: Grief and Personal Growth This manual is based on results of a study of 201 spouses and adult children of person's with Alzheimer's disease. It is targeted to professionals and paraprofessionals who work with family members of persons with dementia. Center on Age and Community, University of Wisconsin-Milwaukee
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Alzheimer's and Kids as Caregivers
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Alzheimer's Disease Management Guidelines: California Version April 2008

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Alzheimer's Disease Management Guidelines: National Version April 2008

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American Association of
Homes and Services for the Aged (AAHSA)
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American Association of
Retired Persons (AARP)
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American
Foundation for the Blind
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American
Society on Aging (ASA)
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Caregiving Across the States Interactive Database
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Center for Medicare
and Medicaid Services (CMS)
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Commission on
Accreditation of Rehabilitation Facilities (CARF)
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CARF Standards for Supports for Persons with Autism Spectrum Disorder (ASD)
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Creative Expression and Dementia Care: Finding Meaning in Dementia, June 2006 When rational language fails, creative expression offers new channels for communication through movement, gesture, poetry, music, and images. Read what experts in the field had to say about the benefits of creative expression in dementia care when they gathered for a 2006 think tank. Center on Age and Community, University of Wisconsin-Milwaukee
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Design Guidelines for Adult Day Services
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by Keith Diaz Moore, Washington State University. Published 2005
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Designing a Better Day: Guidelines for Adult and Dementia Day Services
Centers, by Keith Diaz Moore, Lyn Dally Geboy and Gerald D. Weisman.
John Hopkins University Press, published 2006
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"Dialogues in Best Practice" White Papers Download overviews from the CAC "Dialogues in Best Practice" series, held monthly during the academic year. Designed to get to the heart of practice and evaluation issues in a variety of key areas in aging, the forums aim to ignite ideas for innovations in long term care. Center on Age and Community, University of Wisconsin-Milwaukee
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End Stage Dementia and Culture Change Roundtable, November 2005
This white paper captures the ideas, experience, and questions of experts from a wide array of disciplines as they discuss the challenges of changing the culture of care for people with dementia. From the social to the physical environment, you will find a range of ideas about implementing changes to support person-centered care. Center on Age and Community, University of Wisconsin-Milwaukee
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Family Caregiver Alliance (FCA)
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Health Information (National Institute on Aging)
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HIPAA
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Homebound Status Clarification
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Hospitalization Happens: A Guide to Hospital Visits for Persons with Dementia
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Innovations in Aging Through University and Community Partnerships
Helpful publications, videos and white pages focused on creativity and
innovation to improve the way we age. (From the Center on Age and Community,
at the University of Wisconsin-Milwaukee)
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Intergenerational Programming Resource
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Medicare Homebound Status Clarification
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National
Alzheimer's Association
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National Association of
Area Agencies on Aging (N4A)
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National Center on Senior Transportation (NCST)
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National
Clearinghouse for Long-Term Care Information
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National Council on Aging
(NCOA)
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National Institute on Aging
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Official Business
Link to the U.S. Government
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Partnerships in Aging and Family Caregiving: Getting Innovation into Practice, September 2008
Dr. Rhonda Montgomery hosted CAC's 2008 Think Tank, and posed the questions: "What are the phases of applied research in the area of family caregiving? And how can we find and foster strong partnerships through those phases?" This white paper revisits the day's activities and discussions, and offers compelling insights on building academic-community partnerships. Center on Age and Community, University of Wisconsin-Milwaukee
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QuickFACTS from
MetLife: Information about Retirement, Long Term Care and the Mature Market

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Resources on Aging (National Institute on Aging publications)—Free!
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"Respite
Services: Enhancing the Quality of Daily Life for Caregivers and Care
Receivers"

This 16-page full-color brochure (3rd edition, September, 2006) encourages
informal caregivers to consider using respite services and offer suggestions
about ways to make their respite time most effective. All content is
research-based. Published by Center on Aging at University of Utah in
conjunction with Utah Coalition for Caregiving Support.
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Supporting Rural Family
Caregivers
A copy of the satellite broadcast directed at eliminating the barriers that
prevent people with disabilities from participating in full community life
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Talk Back Move Forward: 100 Years of Alzheimer's Disease What is Alzheimer's? What are our hopes and fears when facing it? Told through vivid photographic portraits by Jim Herrington, and interviews with personal and professional caregivers, people with memory loss, and leading medical researchers, TBMF urges us to do just that - talk back in order to move forward the culture of care and research that surrounds it. A perfect teaching tool for any setting from support groups to graduate classrooms. Center on Age and Community, University of Wisconsin-Milwaukee
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Thanking Volunteers
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The UW-Milwaukee Aging in Community Senior Housing Competition: From Concept to Reality, February 2007 The CAC and the UWM School of Architecture and Urban Planning (SARUP) co-hosted "Aging in Community" in 2007. Key figures in Gerontology teamed with architects to brainstorm innovative ways to address senior housing needs. This new white paper outlines a "how-to" model for implementing a similar program in your community. Center on Age and Community, University of Wisconsin-Milwaukee
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TimeSlips: Creative
Storytelling
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Transportation Solutions for Adult Day Services
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Understanding Medicaid Home and Community Services: A Primer, published October 2000 by U.S. Department of Health and Human Services
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USDA Child &
Adult Care Food Program
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U.S. Department of Labor
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U.S. Department of Health
and Human Services
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U.S. Department of Veterans
Affairs
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Volunteer Recognition and Thank
Yous 
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When Culture Change Meets Home and Community-Based Services 
Standards and Guidelines
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