Data Collection for the 2018 National Study of Long-Term Care Providers
This July, the U.S. Centers for Disease Control and Prevention’s (CDC) National Center for Health Statistics (NCHS) will begin fielding the fourth wave of the biennial nationally representative survey of adult day services centers (ADSCs), as part of the National Study of Long-Term Care Providers (NSLTCP). NSLTCP is an ongoing federally funded data collection effort to gather and report information about the characteristics of ADSCs, other paid, regulated long-term care services providers, and the people they serve.
The 2018 ADSC survey includes design changes in how NCHS collects data about ADSCs and their enrolled participants. For previous ADSC surveys, all operating centers nationwide were asked to participate. In 2018, only about one-third of all operating centers will be asked to participate. Although this sample consists of a fraction of ADSCs, the findings will be statistically weighted to represent all centers in the nation.
If your center is selected to participate in the 2018 study, you will first receive an invitational call from RTI International, NCHS’s contractor for the study. You will be asked to complete a provider questionnaire that collects basic information about your center and participants.
A second call will be arranged with you to complete an interview over the phone for two randomly, scientifically sampled participants from your center. These questions are easier to answer than in previous years. For example, instead of asking the center director to aggregate the number of participants in the center that have a certain diagnosis or disability—as in previous survey years–the director will be asked whether or not a sampled participant has the diagnosis or disability. This will mark the first time NSLTCP has collected information about individual participants. The benefit of collecting individual participant information is that NCHS will be able to obtain a more in-depth understanding of participant characteristics compared to the information NCHS obtains from the collection of aggregated participant information only.
The redesign will provide a new resource for researchers, policymakers, and others, like you, who are interested in the adult day services sector. For previous NSLTCP surveys, information collected was released through a variety of freely accessible reports published to the NSLTCP website, while data files were accessible for a fee from NCHS’s Resource Data Center. For the 2018 survey, in addition to releasing information via freely accessible reports and products, NCHS will create a public use file (PUF) that will be available for download from the NSLTCP website free of charge. The PUFs will contain de-identified information about all eligible centers and participants that were sampled in 2018. This will allow stakeholders to easily access NSLTCP data for their own analyses. Under law, NCHS will not release any information that would allow identifying a center, its staff or its enrolled participants.
Importance of Participating in the 2018 National Study of Long-Term Care Providers
Each completed questionnaire is an enormously valuable contribution to the adult day services sector’s profile. Policymakers, long-term care providers, health care planners, and researchers will look to these data to monitor changes in adult day services, which is an important sector of long-term care services and supports for the elderly and disabled populations.
If your center is sampled in 2018, please participate and encourage others to do the same. Your participation enables NCHS to continue to serve you with reliable, trusted information, to support you in the important work you do serving participants, their families, and your communities. NCHS values the overwhelming support that NADSA and its members gave to this federal initiative during previous survey waves, and hope for your continued support in 2018.
2016 NSLTCP ADSC Survey Data and Documentation
Restricted Data File and Readme Documentation
The 2016 ADSC restricted data files were released in December, 2017. In order to access the restricted data files researchers must submit a proposal, which will be reviewed by NCHS staff. Fees are charged for accessing the data. More information is available at the RDC website (http://www.cdc.gov/rdc). The 2016 ADSC restricted data file readme document describes the data and some of the processes involved in creating the restricted data files. Link to the restricted data file readme: https://www.cdc.gov/nchs/data/nsltcp/NSLTCP_2016_ADSC_Readme_RDC.pdf
Survey Methodology Documentation
This document describes the survey methodology, including sample design, frame information, and data collection protocol for both the ADSC and residential care community components of the 2016 NSLTCP. Link to the ADS survey methodology: https://www.cdc.gov/nchs/data/nsltcp/NSLTCP_2016_survey_methodology_documentation.pdf
The blank data dictionary provides a description of all variables on the ADSC restricted data file. Link to the data dictionary: https://www.cdc.gov/nchs/data/nsltcp/NSLTCP_2016_ADSC_Blank_Codebook.pdf
2012-2016 NSLTCP Survey Content Crosswalk
This document lists all topic areas covered by the adult day services and residential care components of the NSLTCP, spanning the years 2012 to 2016. Link to the crosswalk: https://www.cdc.gov/nchs/data/nsltcp/NSLTCP_2012-2016_crosswalk.pdf
Published Reports and Products Using Data from the 2016 ADSC Survey
Weighted National Estimates and Standard Errors Tables
This document provides the weighted estimates and associated standard errors for selected variables. Weighted estimates are provided for original variables based directly on the survey response categories as well as derived or new variables that are adaptations of the survey responses. While most of the estimates are at the ADSC level, in order to make the data more useful, we have converted ADSC level variables to participant-level measures wherever applicable. The tables may be accessed at no cost from NSLTCP’s “Study Results and Publications” website: https://www.cdc.gov/nchs/data/nsltcp/2016_NSLTCP_ADSC_Weighted_Estimates.pdf
National Data Brief and Supplementary State Tables
Data Brief #296: Variation in Adult Day Services Center Participant Characteristics by Center Ownership: United States, 2016. Link to document: https://www.cdc.gov/nchs/products/databriefs/db296.htm
This data brief is an update to the 2014 version, which examines a variety of participant characteristics between nonprofit and for-profit centers nationally. These characteristics include race and ethnicity, age, gender, Medicaid use, activities of daily living, health conditions, falls, and hospital services use. Included with the data briefs is a set of complementary web tables that provide state estimates for each of the characteristics included in the data brief. The state web tables may be accessed here: https://www.cdc.gov/nchs/data/nsltcp/State_estimates_for_NCHS_Data_Brief_296.pdf
This is a figure that shows the percentage distribution of ADSC participants by place of residence. Link to QuickStat: https://www.cdc.gov/mmwr/volumes/67/wr/mm6702a9.htm?s_cid=mm6702a9_e
Future Reports and Products Using Data from the 2016 ADSC Survey
NCHS is preparing to release a long-term care overview report that will feature important findings on ADSCs from the 2016 NSLTCP, together with the other four major long-term care providers: nursing homes, home health care agencies, hospices, and residential care communities. This report will include national and state-level estimates where possible, on a range of characteristics about centers and participants.
NCHS plans to release additional reports and products using data from the 2016 ADSC survey throughout 2018. Please join the Long-Term Care Listserv to stay informed about report and product releases from the 2016 ADSC survey and to track updates about the 2018 NSLTCP: http://www.cdc.gov/nchs/dhcs/longterm_listserv.htm
Contacting the Long-Term Care Statistics Branch at NCHS
Please contact the Long-Term Care Statistics Branch (LTCSB) at 301-458-4747 or at firstname.lastname@example.org if you have any questions about NSLTCP or about the survey documentation, reports, and products listed above.