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National Study of Long-Term Care Providers Report

LTCPRSecond Wave of the National Study of Long-Term Care Providers Begins in Early June:
All Centers are Invited to Participate

In early June, the U.S. Centers for Disease Control and Prevention’s (CDC) National Center for Health Statistics (NCHS) will conduct the second wave of the National Study of Long-Term Care Providers (NSLTCP). NSLTCP, which was first conducted in 2012, is a federally funded data collection effort to gather and report ongoing information about the characteristics of adult day services centers and other paid, regulated long-term care providers. The information collected through NSLTCP is used to inform the CDC overview report on the major types of long-term care providers that include adult day services centers, assisted living and other residential care communities, home health agencies, nursing homes, and hospices. The first report, Long-Term Care Services in the United States: 2013 Overview, was released in December 2013 and is available online. Continuing feedback on this report indicates that it is a valuable resource to state and federal policymakers, providers, and researchers.

Web tables of state-level estimates for characteristics included in the CDC 2013 overview report will be released in August. Additionally, two data briefs on adult day services centers and their participants will be released in mid-summer, along with supplemental web state tables on the characteristics of adult day services centers and their participants.

Directors of the more than 5,000 adult day services centers identified in the U.S. through NADSA will be asked to complete the NSLTCP questionnaire. NSLTCP is designed to collect information about the characteristics of adult day services centers, including the services they offer, participant fee revenue sources, staffing, and demographics and health status of the participants they serve.

NCHS learned two key lessons from the 2012 NSLTCP: (1) center directors desired a shorter survey, and (2) center directors needed a longer timeframe to complete the survey. In response to this helpful feedback, NCHS reduced the survey to eight pages and is starting data collection in early June to give directors more time to complete the survey. The 2014 questionnaire will take directors, on average, 30 minutes to complete. The user-friendly format still includes questions with yes/no responses, questions with a select list of response options, and fill-ins, some of which require respondents to check their adminstrative and participant records. Providing accurate responses to each question, including filling in zeroes where applicable, is very important. When you submit the completed questionnaire, you help ensure that the adult day services industry will be accurately represented in the next NSLTCP overview report.

NADSA continues to be a key supporter in the development and promotion of NSLTCP. This collaboration has been valuable in ensuring that NSLTCP captures the unique characteristics of adult day services centers and the important work they do in meeting the diverse needs of the nearly one-quarter million elderly and young disabled participants they serve each day (Long-Term Care Services in the United States: 2013 Overview, National Center for Health Statistics; the report is available online). For the 2014 NSLTCP, NADSA along with LeadingAge and the National Association of States United for Aging and Disabilities have provided a joint letter of support to encourage participation by all adult day services center directors.

The data collected from each participating adult day services center will be kept confidential, as was done for the 2012 NSLTCP. Furthermore, NCHS has a long history of conducting surveys and is required by federal law to protect the privacy of the information it collects in its surveys.

NCHS has contracted with RTI International, an independent, nonprofit research organization to collect NSLTCP data. RTI has a dedicated survey team and a toll-free phone number (1-877-225-4434) where respondents can call to ask questions about the survey. The following bullets provide key NSLTCP dates:

  • Early June: Advance letters mailed by USPS mail from NCHS’ Director Charles Rothwell to all adult day services center directors, informing them of NSLTCP and its importance, and letting directors know when they can expect to receive the questionnaire packet.
  • Mid-June to late-August: NSLTCP questionnaire packets mailed by USPS to adult day services center directors.
  • December 2014: End of 2014 NSLTCP data collection.

It is critical that center directors complete all questionnaire items as accurately as possible, including entering zeroes where applicable. It is also important for center directors to return the completed questionnaire to RTI as early as possible, preferably in June when they receive the first questionnaire packet. This will help NCHS to avoid spending unnecessary federal funds in follow-up mailings and telephone calls to encourage center directors to participate in the survey.

Lastly, this federal study represents a significant opportunity for the adult day services industry to be recognized for its important role as a major long-term care services provider. Participation by all adult day services centers will contribute to this effort and help ensure that CDC’s reports accurately reflect trends in the adult day services industry. NADSA encourages all adult day services centers to participate in the 2014 study because every center counts!

Additional information about NSLTCP is available online at

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